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Rare Disease Day 2019
28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day is open to everyone! Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities—the more people involved the better! As you’ll find out, there are many ways to participate. Let’s join our efforts to give hope to rare disease patients all over the world!